Welcome to the PHE/LSHTM Women’s Reproductive Health Experiences Survey
Thank you for your interest!
The London School of Hygiene and Tropical Medicine and Public Health England have created an online survey about women’s reproductive health experiences.
Who can take part?
You can take part if:
- You are a woman or were described as female at birth who are now trans or non-binary
- You are aged between 16 and 55
- You live in England
Before agreeing to take part, please read the information below. After reading this, you will be able to click through to the survey.
Women’s Reproductive Health Survey - Information Sheet
We would like to invite you to take part in a research study. Joining the study is entirely up to you. Before you decide, you need to understand why the research is being done and what it would involve. Please contact one of the researchers (details below), if you have any questions, if anything you read is not clear, or you would like more information. Take as much time as you need to decide whether or not to take part. Please feel free to talk to others about the study if you wish.
The London School of Hygiene and Tropical Medicine (LSHTM) and Public Health England have created an online survey about women’s reproductive health. For this particular survey, we are interested in the experiences of women and those who were described as female at birth who now are trans or non-binary, are aged 16-55, and who live in England. We will use the information from this study to improve the survey. The final survey will then be used nationally, to understand more about women’s reproductive health experiences over time. This information will inform government decision-making and policy.
You have been invited because you are a woman or were described as female at birth, are aged 16-55, and reside in England.
No. It is up to you to decide to take part or not. If you do not want to take part, that is ok. If you agree to take part, we will ask you to provide your consent on the next page.
If you decide to take part, after providing consent, you will be taken to the online survey. The survey should take around 20 minutes on average to complete.
You will be asked to answer the survey questions about your reproductive health experiences. Example topics are menstruation (periods), contraception, pregnancy, menopause sex and relationships.
Because reproductive health topics can be sensitive, some questions could make you uncomfortable. You do not have to answer anything that you do not want to and you can stop the questionnaire at any time.
We cannot promise the study will help you but the information we get from the study will help our knowledge and understanding about women’s reproductive health.
If you have a concern about anything about this study, you should ask to speak to the researchers who will do their best to answer your questions [Dr Ona McCarthy +44 (0) 20 7927 2581]. If you remain unhappy and wish to complain formally, you can do this by contacting the sponsor: Patricia Henley at email@example.com +44 (0) 20 7927 2626. [The London School of Hygiene and Tropical Medicine holds insurance policies which apply to this study. If you experience harm or injury as a result of taking part in this study, you may be eligible to claim compensation.]
Yes. You can withdraw from the study by stopping the survey or contacting the researchers to tell us that you do not want to be in the study anymore. If you withdraw from the study, we will delete your name and mobile phone number (if provided), but we will use the survey data entered up to your withdrawal.
We will use your answers to the survey for this research project. Only the study staff and authorities who check that the study is being carried out properly will be allowed to look at information about you. We will keep all information about you safe, stored on a secure server at LSHTM. Your personal details (postcode, first name and mobile number, if provided) will be kept in a different safe place on a secure server at LSHTM to your answers to the survey questions. All data will be deleted from the online survey host when the survey closes and personal details will be deleted at the end of the study (Sept 30 2021).
De-identified survey data will be sent to study staff at PHE. This means that the survey data will have your postcode, first name and mobile phone number (if provided) removed so that you cannot be recognised and your data will have a code number instead. At the end of the study, the de-identified data will be archived at the at London School of Hygiene and Tropical Medicine kept for 10 years after the end of the study. The data will be made available to other researchers worldwide for research and to improve reproductive health knowledge and patient care. Your personal information will not be included and there is no way that you can be identified.
You can stop being part of the study at any time, without giving a reason, but we will keep information about you that we already have. We need to manage your records in specific ways for the research to be reliable. This means we won’t be able to let you see or change the data we hold about you.
You can find out more about how we use your information:
- at https://www.lshtm.ac.uk/files/research-participant-privacy-notice.pdf
- by asking one of the research team
- by sending an email to DPO@lshtm.ac.uk
- at https://www.hra.nhs.uk/information-about-patients
The study results will be used to create the final survey. The results may be published in an academic journal so that other researcher can learn from them. Your personal information will not be included in the study report and there is no way that you can be identified from it.
London School of Hygiene and Tropical Medicine is the sponsor for the research and they have full responsibility for the project including the collection, storage and analysis of your data, and will act as the Data Controller for the study. This means that we are responsible for looking after your information and using it properly. Public Health England is funding the study.
All research involving human participants is looked at by an independent group of people, called a Research Ethics Committee, to protect your interests. This study has been reviewed and given favourable opinion by The London School of Hygiene and Tropical Medicine Research Ethics Committee.
Thank you for taking time to read this information sheet. If you think you will take part in the study please read and complete the consent form at the start of the survey.
If you would like any further information, please contact the Principal Investigator who can answer any questions you may have about the study.
Principal Investigator: Dr Rebecca French, +44 (0) 20 7927 2047
Dr Ona McCarthy +44 (0) 20 7927 2581
To download a copy of the information above, click here
Take part in the study
Get in touch
If you have any further questions, please contact the study team at: firstname.lastname@example.org
Help on issues relating to the survey content
- Health services near you: NHS Choices https://www.nhs.uk/Service-Search
- Pregnancy advice, pregnancy loss, infertility: Tommys www.tommys.org/
- Contraception and sexually transmitted infection: Family Planning Association www.fpa.org.uk/home
- Free and confidential help for young people: Childline www.childline.org.uk
- Brook advice for young people www.brook.org.uk
- Advice about sexual health and HIV: Terrence Higgins Trust www.tht.org.uk
- Abortion clinic, information, advice, treatment: BPAS https://www.bpas.org
- Information, support, referral services for lesbians, gay men and bisexual and trans people, and anyone considering issues around their sexuality or gender identity for LGBT+ Helpline http://switchboard.lgbt/help
- Someone to talk to, available 24 hours a day for confidential, non-judgmental support: The Samaritans https://www.samaritans.org
- Advice and support to anyone experiencing a mental health problem: Mind www.mind.org.uk
- Information on nearest services for people who have experienced sexual violence: Rape Crisis https://www.rapecrisis.org.uk
- 24-hour domestic abuse advise for women and children: Refuge www.nationaldahelpline.org.uk